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Welcome to the Oxford Pulmonary Fibrosis Support Group

We are a mutual support group for individuals and those close to them, who are living with pulmonary fibrosis; we meet on alternate months at Sandford-on-Thames Village Hall. We are all patients who are seen at the Oxford Interstitial Lung Disease Service at Oxford University Hospitals NHS Foundation Trust. Though we all come into Oxford for our clinic appointments, we live across a wide area spanning; Oxfordshire, Berkshire, Buckinghamshire, Northamptonshire and Warwickshire. 

While lung fibrosis can have a variety of causes, it can leave all those living with this condition feeling isolated. It is unlikely that any of us will meet another person living with lung fibrosis during our everyday lives and a clinic is not the ideal setting to meet others. Our support group provides a valuable opportunity for patients as well as friends and family to come together and meet others who are facing similar issues. We have now been running since September 2014. We are made up of patients and healthcare professionals who come together for mutual support, have a chat, and enjoy a rather fine selection of cake (all in moderation of course).

CHANGE OF DATE!!!!!

As you may well have noticed we are having an election on 12th December. The fine hall we meet in will therefore be in full use as a polling station. We have moved our meeting to the following week Thursday 19th December and the fine Christmas Lunch (please see below) has also been moved. 



IT'S CHRISTMAS!!! (well nearly)



It's that time of year again when summer is a distant memory and the nights begin to draw in. Which means we can soon look forward to the new John Lewis Christmas ad and also the December support group meeting. As has become (almost) a tradition we will be having an end of year review by our lead ILD consultant Dr Rachel Hoyles followed by a Christmas quiz! All of this will be washed down by copious amounts of tea / coffee and mince pies. Following this some of us will be enjoying a Christmas lunch next door at the Oxford Thames Hotel. The lunch menu has a fine selection which includes all your usual festive favourites. It is £20 per head and if you are interested please let us know by e-mail at Oxford.ILD@ouh.nhs.uk and we can send you the menu... Look forward to seeing you on 19th December!!!

We are supported by the British Lung Foundation and Action for Pulmonary Fibrosis.

 

If you have accidentally stumbled here via Google (or any other rather fine search engine) and have an interest in our group, then please write to us at Oxford.ILD@ouh.nhs.uk.







How to find us...
  • Where do we meet?

    Henley Road, Sandford On Thames,
    Oxfordshire OX4 4YN.
    A a map can be found by clicking on the above picture or the following link:
    http://sandford-on-thames.webplus.net/googlemap.html


  • When do we meet?

    Our meetings run from 10:30-12:30 (though we can overrun) and are held on the second Thursday every other month.
    Our next meeting is on 19th December 2019.

    A full list of dates for 2020 can be found on the meetings tab or by clicking on the calendar.



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